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A Family Disease

- A Memoir of Multigenerational Ataxia
Af: Dana Lorene Creighton Engelsk Paperback

A Family Disease

- A Memoir of Multigenerational Ataxia
Af: Dana Lorene Creighton Engelsk Paperback
Tjek vores konkurrenters priser

Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.

Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother''s suicide, Creighton''s memoir finds striking similarities and differences in their lives and traces a lineage of family trauma.

Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

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Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.

Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother''s suicide, Creighton''s memoir finds striking similarities and differences in their lives and traces a lineage of family trauma.

Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

Produktdetaljer
Sprog: Engelsk
Sider: 202
ISBN-13: 9781476683188
Indbinding: Paperback
Udgave:
ISBN-10: 1476683182
Udg. Dato: 25 jan 2021
Længde: 10mm
Bredde: 152mm
Højde: 229mm
Forlag: McFarland & Co Inc
Oplagsdato: 25 jan 2021
Forfatter(e): Dana Lorene Creighton
Forfatter(e) Dana Lorene Creighton


Kategori Sociologi: familie og relationer


ISBN-13 9781476683188


Sprog Engelsk


Indbinding Paperback


Sider 202


Udgave


Længde 10mm


Bredde 152mm


Højde 229mm


Udg. Dato 25 jan 2021


Oplagsdato 25 jan 2021


Forlag McFarland & Co Inc

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